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Thriving not Surviving

Thriving

On the 7th November 2007 my life changed.  

I have always been a fighter, and most people wouldn’t have known that there was anything wrong with me at the time (apart from my facial changes). I have always been a believer that thriving not surviving is what life is all about. 

Six months before my surgery I had been diagnosed with Acromegaly, a condition which is caused by a tumour on your pituitary gland which results in your body producing too much growth hormone. I was in pain, I was exhausted and my mood was all over the place. If you want to read more about my story at that time I wrote a blog about my experiences.

It was a lot to cope with, mentally and physically at the time. I had been told for 6 months that my body wouldn’t return to what it had been before, that I wouldn’t be able to have any more children and it is a long and invasive surgery which took me a good six weeks to recover from. 

I have never experienced fatigue like that.

 

I had just got my head round the fact I couldn’t have any more children when I found out I was pregnant with my son. This was a huge blessing but also led to lots of unanswerable questions; would I go full term? could I go into labour? would I be able to breastfeed? My consultant wanted to do follow up tests which couldn’t be done because I was pregnant so it was a time of uncertainty.

Fortunately I’m built of tough stuff and 14 months after my surgery, my son Dan was born. 

Happy, healthy and almost 11 years old now.  

It was a difficult time looking back but it’s incredible what we can do when we need to. I challenged my body as much as I possibly could have all within months of my pituitary surgery. During the first three months of pregnancy your pituitary gland grows significantly, which six months after surgery probably isn’t adviseable. But here I am 12 years on and I’m still thriving.

Is my life the same as it was before my diagnosis?

No of course not.   

I am acutely aware at times that my energy levels are seriously affected. I have to plan my work around my body’s capabilities. I rarely book more than two days out of the office in a week because if I do it takes me a few days to recover. I have created a business that allows me to work around my numerous medical appointments, my energy levels and my physical limitations.  

I was asked the other day if I would ever consider going back to teaching. The reality is that I couldn’t, for many reasons but mostly because I couldn’t cope with the long days, the amount of standing and squatting (I taught primary), the amount of marking (my hands are probably the part of my body most affected by my joint damage) and no school these days would employ me knowing that I need one sometimes two days off every six weeks for my injection, the consultant appointments, MRI, colonoscopy… I’m not exactly an appealing prospect anymore. 

More importantly though, for the first time in my life I have realised that sometimes it’s ok to put myself first. For years my priority was making sure everyone else was cared for and happy. I can’t pretend that I don’t still care for everyone. I’m a mum and a wife and a sister and a daughter… but I have learned that if I am taking time to care for other people I need to give myself the same amount of time, sometimes more.  

I don’t  give myself a hard time for needing a nap or an hour in front of Netflix. I will go for a long, hot bath if I feel that it is what my body needs. Whatever it is that I need to do to help me feel calm and as though I have enough energy I will make sure I do it if I possibly can. 

Life has changed a lot in the last 12 years. I have gone from having a fiercely independent 3 year old daughter to having an even more determined and amazing 15 year old young woman. I have gone from thinking I would never have any more children to having a lively, brilliantly funny, football mad little man. My marriage is stronger than ever. I have discovered who my real friends are and made lots of new friends. I have built two businesses from nothing and grown in confidence in every part of my life. 

I was reborn

It might sound dramatic but that one event in my life changed me forever, for the better.

Yes I have physical limitations and I have to be very careful what I eat and how I care for my body, but the mental and emotional changes were possibly even more dramatic. 

I have learned:

  • The world keeps turning with or without me.
  • I don’t have to do everything.
  • It’s ok to ask for help.
  • To wear clothes that make me feel happy and confident not save them for best.
  • To not keep anything for best. Every day is the best day to wear/eat/use your favourite things whether it is perfume, crockery, clothes…
  • Busy isn’t always better. So many people think that being busy makes you more important. It’s ok to not be busy all the time and to be happy doing nothing.
  • To appreciate everyone in my life. My family and friends are amazing and I love them all very much.
  • It’s ok to create a life that works for you. It might not suit anyone else, that’s the point.
  • To do what makes me happy.

I have met so many people who have been though similar life changing events and come to similar conclusions. I just think it is a shame that for most people it takes a health scare or a big tragedy in their lives for them to starting living life to the full. 

What small changes can you make today to ensure that you are living your best life? 

 

 

A little help from my friends

A little help
Help is a difficult word for many people. 

We would often rather struggle alone than admit that we need help and support with a task or situation.

I know I am guilty of this, and always have been. 

I have had several reminders of this over the last 24 hours so I thought I would get some thoughts out and see if you can relate.

Yesterday my husband, son and I went to a barbeque at a friend’s house. It was only local so my daughter (15) asked whether she could stay and get some work done and relax so we agreed. 

When we returned home it was clear something had happened.

I won’t go into details but she was upset and worried and it was all over nothing. No-one was hurt, nothing was damaged, but her mind had run away with her and she had had half an hour of worrying when if she had just called and spoken to us we could have set her mind at ease.

I was heart broken that she hadn’t called me but she didn’t want to interrupt us and doesn’t like to ask for help. 

 

How can I be mad about that when I am so bad at asking for help myself? 

All my life I have been stubbornly independent.  

I didn’t like being helped, I could do it!

If I didn’t know how to do something I could find out. It has caused more than a few arguments with my very patient husband over the years.

Then, when I was very ill, I couldn’t physically do everything alone. I tried, I really tried, but the combination of pain, chronic fatigue and a toddler made it impossible. I was convinced that if I didn’t do everything myself it wouldn’t get done (or certainly not the way I wanted it to be done – me control freak?). 

Imagine my frustration when I had to spend six weeks convalescing at my parent’s house, a hundred miles from my own little family! For the first time in my life I had to trust other people to care for the most precious thing in my life, my daughter. She was only 3 years old and still needed so much help. She was also already stubbornly independent, but she needed feeding, her clothes getting out, taking to nursery… I could do nothing to help. I could barely walk to the kitchen to get a drink let alone drive a hundred miles and make my daughter one! 

But do you know what. She survived. Better than that, she thrived. She was spoilt a little, but that’s ok sometimes, she was dressed and fed and happy and all without my input. 

That was the moment that the world wouldn’t stop spinning if I didn’t do it all alone.

From then on I stopped worrying about being the “perfect” mum. I put my own wellbeing before the need to appear to be coping.

I asked for help.

Did I ask for help as often as I should? 

No, of course not! None of us do. But I don’t struggle with something if I know there is someone who will be able to do it better/quicker/easier than I can. 

I ask my husband to cook tea if I’m tired, I ask him to make a graphic in photoshop if I need it because he is so much better and quicker at that! I ask my children to help with housework. Everyone in our house does their own laundry. It isn’t laziness, it is contributing to the house you live in, and at 10 and 15 years old they are more than capable. 

“Dependence starts when we are born and lasts until we die… But in the middle of our lives, we mistakenly fall prey to the myth that successful people are those that help rather than need, and broken people need rather than help.

Brené Brown

Rising Strong

Since my diagnosis I have had to be realistic about my limitations. I might want to live in a perfectly clean and tidy house all the time but sometimes I have to decide between using my energy to have fun with my family and using it for work, when faced with these choices, using it for housework doesn’t get a look in!

There are some jobs I find almost impossible. For example scrubbing things or very close work like sewing. My hands cramp very easily and I struggle with anything repetitive. I try to make sure that I eat the right foods for my body and take supplements to help my joints, but unfortunately they were damaged by my acromegaly before my surgery so they will never been as good as they should be.

Being forced to ask for help sometimes though has taught me that it isn’t as scary as I used to think.

It isn’t admitting defeat. It isn’t a sign of weakness. It is just an acknowledgment that you have a lot to do and that there are some things that you could be helped with rather than doing it all alone.

This morning my best friend, Callie, sent me an email (as she does every Monday) with an oracle card from Colette Baron-Reid’s “Wisdom of the Oracle” Deck. Every week she sends a newsletter with a message for the week.

This week’s message was all about asking for help. It resonated with me so strongly. The next couple of weeks I have a lot to fit in. I have trips, meetings, writing, resources to create for my schools, meals out with family, even a trip to the West End. Once upon a time I would have been heartbroken if my family had arrived for the weekend and the house wasn’t spotless. Now, I will make sure the beds are up and clean (there will be 10 of us sleeping here this weekend), I will make sure there is food in the cupboards and I will have a quick clean and tidy round.    

I won’t beat myself up though if I run out of energy and can’t dust everywhere. Or if I can’t present them with a show home. They are my family. They love me and they know my physical restrictions. They would definitely rather I have the energy to enjoy our trip to London on Saturday than spend a few hours in an immaculate house! Let’s be realistic, by the time my children have come in from school and their shoes and bags have been joined by another six visitors with bags, shoes, coats and tranklements (as my father in law would call them) it won’t be tidy and clean anymore anyway. At most it will last a few minutes. 

The important thing about this weekend is quality time spent together, not how clean the carpet is, not whether you can see your face in the taps. Time and memories are so precious. Priorities can be blurry sometimes, but let me tell you, you will never regret spending quality time with loved ones. You will never regret putting your wellbeing before your need for the appearance of perfection.   

The problem with trying to do everything alone is that we aren’t designed to be lone wolves. We are pack creatures. We function better in ever way the we play to our own strengths and when we share the emotions and stresses of life. When we attempt to do it all it can cause physical and emotional stress and you don’t need me to tell you that this isn’t good for you.

What can you ask for help with today? 

 Perhaps like me, you need to ask a friend to collect your son from school one night? Maybe you could ask someone to help you with something at work? Whatever it is, take a deep breath and ask for help.

The more you do it, the easier it gets.

Helping others gives us a warm, fuzzy feeling inside. Why would we deprive our friends and loved ones of the joy of that feeling when they are able to help us?

Mindful Being

Being mindful

Mindful being for me is a daily state.

It is my nirvana, my end goal. When we are living totally mindfully we are present all the time and in complete control of all our emotions and senses. 

In reaction it is far from a daily state for me at the moment.  

My brain is currently being hijacked by hormones. My emotions are all over the place. One minute I am crying with joy, the next I am crying with fear and then every so often insecurity pops in for a cuppa.  

I have been here several times before. When I was in my teens my hormones ruled the roost. I all alone battling the sea of adversity.  

The reality of course was very different, and for the most part I was fully aware how lucky I was, but there were times when it felt that no-one understood what I was going through.

Then there was the time in my early thirties before my acromegaly was diagnosed when I was once again returned to a hormonal, eating sleeping bag of nerves. It was like going through a second puberty.

Hormones have a lot to answer for! 

Many, in fact I think MOST, women have a complicated relationship with hormones. Mine has been particularly interesting though. It might sound like I’m complaining. I’m not. I’m actually very grateful (most of the time!) for the amazing insights that my illness have given me. It has made me much more compassionate towards my children when they have had hormone related challenges from potty training to puberty. 

What it has done though is made this latest rollercoaster a little harder to ride.   

You see because my condition is hormone based a lot of the symptoms I had when I was ill; fatigue, short temperedness, aching joints, headaches, night sweats, sugar cravings, weight gain, irregular periods… are also the most common symptoms of peri menopause. 

I was managing to keep a lid on my fears  really well until I had a migraine last week. 

I have only ever had one migraine before and that was when I was pregnant with my daughter (before my diagnosis but I suspect around the time that my symptoms really started to be evident). Most of my family suffer from migraines so I knew what it was, and thankfully it wasn’t a bad one, but it did take me 3 days to shift the headache. Not helped by the niggling fear that all these symptoms were just too similar to my pituitary tumour returning. The tension in my shoulders and neck resulting from these fears was giving me a secondary headache and just adding to my worries.   

Was I able to find a state of mindful being?  

Yes, well, most of the time.   

Honestly though my heart was starting to rule my head and I was getting more and more panic stricken until I had to turn round half way to taking my son to school because I had a strange sensation in my head and ears and it all just got too much. I broke down in tears and rang the doctor.   

The doctor of course confirmed my peri menopausal symptoms and she completely understood my fears. She was very patient and looked back through my most recent MRI results and blood tests, which I have so regularly that she was able to set my mind at ease about my tumour. As always though she daren’t prescribe anything to ease any of my symptoms without checking with the doctor. 

Now I am determined not to be ruled by my hormones any more than is necessary but as much as I would probably have wrestled her to the floor for HRT last week, I’m glad for this cooling off period to look at other alternatives. So I am reading Andrea Maclean’s book “Confessions of a Menopausal Woman” (which I highly recommend if you are in the same place as me!). I am going for an acupuncture session this morning, am looking into essential oils, magnets, diet… you name it!

 

I will rediscover my mindful being.  

It is important to remember  when we are being hijacked by our hormones that we can regain control.

We also mustn’t beat ourselves up for giving in to those very basic urges sometimes. We cry, we shout, we eat a whole packet of biscuits or drink a whole bottle of wine. 

It is good?  

Not really.  

Do we feel proud of ourselves?

Not usually. 

But sometimes it happens. Just by being aware that we feeling this way and acknowledging why puts us ahead of many people. Having the ability to stop, take a deep breath, acknowledge our thoughts and feelings and keep doing is a powerful and liberating thing.   

So until I have ridden out this hormone storm I will continue to be imperfectly perfect. I will do everything in my power to keep in control of my moods and my behaviour. I will strive for mindful being as often as I am able, but I won’t beat myself up for crying in the supermarket or shouting at the laptop irrationally.

I will be me. All day, every day. I will be real. I will be kind hearted with an occasional temper and frequently leaky eyes. I will embrace my wobbly bits and not beat myself up for brain fog. Most importantly I will be happy in this transition. Few of my fellow acromegaly sufferers ever experience this because their treatment prevents it. Most patients don’t discover they have this illness until after they have been through this change. I feel privileged to be able to experience this next phase and am looking forward to life post menopause.  

We must talk about this more though. I have learned more about this time of life in the last few months than I could ever have imagined. Only by talking about all these enormous challenges faces by women can we start to make life easier for those experiencing them. The world needs to be more accepting of this amazing metamorphosis. Yes it is a sign that we are ageing, but what a huge privilege that is, and I’m sorry but I’m not ready for the care home just yet (despite what my son thinks!), I’m not 43 yet! 

Let’s celebrate this amazing transition and stop hiding away and trying to keep going through whatever adversity is thrown at us! We are women, we are incredibly strong but we are also best when we share our experiences and support each other.

  

Disclaimer: This post contains affiliate links. This means that if you click the link and buy the product/service associated I will receive a small payment in return. The product/service will not cost you any more. I never recommend anything I have not experienced myself. I always appreciate any purchases made using my links as they enable me to continue writing and helping more people. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

This is me! – Out of my comfort zone

This is me

If you have been reading my blog the last few months you will have heard all about my husband’s fabulous experiences working with The Real Full Monty team. This incredible group of people came together and have raised well over £30k for KMAC (a cancer charity). 

If you have missed my previous posts about this life changing show you can read them here:

What could you achieve?

Life Changing Moments

Well, the show was so successful that the theatre have asked them to recreate it next year and have given them the theatre for three nights this time. Amazing!

I know what you’re thinking, “surely she isn’t going to write a blog just to tell us that they are doing a show that’s miles from where I live again next year?”. 

No, no I’m not. There is much more to this post.

When I was younger I did a lot of performing; school productions, local amateur dramatic and youth theatre groups, choirs etc. I loved it. 

I even sang at The Palladium when I was in my twenties (it was one night but definitely the pinnacle of my performing career!). Since I had my children, and my illness though I haven’t done any theatre work and have only sung at a couple of family events

 

Honestly, I’m scared to. I have wanted to look into joining an amateur dramatic group locally for years now. My daughter is doing Performing Arts GCSE and loves it too and I would love to do a show with her. Unfortunately one of the many side effects of my acromegaly is chronic fatigue and I am scared to commit to months of rehearsals and let everyone down because my body doesn’t let me do it.

She’s still waffling on, does she have a point?  

Well, yes I do. You see I have agreed to be part of The Real Full Monty 2020. I will be dancing with the girls and overcoming so many fears I have lost count.  

Will my body cope with rehearsals and dancing?

Can I overcome some lingering body confidence issues?

Can I stay sane while rehearsing and performing whilst supporting my children through Y6 SATs and GCSEs?

I know I need to do this, but it is going to push me so far out of my comfort zone I won’t even be able to see my little zone of happy anymore!

I feel very fortunate to be able to take part in something so inspirational. I will hopefully have the opportunity to share a little about my acromegaly journey and the lasting effects that that has had on my body confidence and my emotional wellbeing. I will be spending lots of lovely time with my gorgeous hubby, Ian, because he is going to be documenting it all again. This of course means that not only do I get to spend time with him, I have the security of knowing that he will be there if I have a wibble. 

We are raising money for three incredible local charities, all of which are very close to my heart and some of my favourite people in the world are going to be dancing along side me. If ever the stars could align to tell me that this is something I need to do!    

There will undoubtedly be times when I need to reach into my relaxation toolbox to calm my nerves. I will no doubt spend many hours talking to my loved ones about the process and the issues it is raising for me. I have also bought a journal to start documenting all my thoughts and feelings to help me process everything, and remember the journey. 

I’m sure I will be giving you lots of updates as I take my tentative steps along this path, but I wanted to share how excited I am to be joining such an incredible team. 

There is another reason that I am writing on this subject this week. The dance will more than likely be to the amazing song from The Greatest Showman, This is me. This song is so significant to me. I wrote quite extensively about it when I saw the film (read my article), it feels like my anthem now.   

My sister and I are going to see the gorgeous Hugh Jackman (or Huge as he is known affectionately in our house!) on Monday. Imagine my excitement when it was announced last week that Keala Settle, the incredible lady who performed “This is me” in the film, is going to be joining him for his UK tour! I might actually get to see this life changing song performed live!  Follow me on social media for pictures from the concert and lots of pictures of my sister and I looking over excited!  

 

Life Changing Moments

Life Changing

Three weeks ago an event took place that transformed my life, I suspect forever. What’s really strange is that I wasn’t really even involved in it. 

In my last blog I talked about how important it can be to make the most of opportunities when they come your way. At that point I was marvelling at the transformations I had seen in the cast and crew of The Real Full Monty. I had watched these amazing people transform from shy and insecure to radiant, confident, inspirational beings. 

Little did I realise when I wrote last about this project how much our lives would change as a result of this one event.

So what has happened that is so dramatic?

Well, it has been profound, for me at least. I will attempt to explain.

 

This is Ian. If you have been reading my blog or following me on social media for a while you will know that he is my husband and my world.

Over the years he has grown and transformed so much. This photo captures perfectly the latest stage in this transformation, thank you Sam Carpenter Photography. One of the cast hit the nail on the head when she said he was the “proud father of the show” his face here radiates pride and joy at what the cast are achieving. It is one of my favourite photos, ever. 

But what has this got to do with life changing moments?

Well, this show started a ripple.

These photos were taken last Saturday, they were taken by our friend Evie, while we were out celebrating Sam (the amazing photographer)’s birthday.  

What has THIS got to do with life changing moments? 

Well, a lot actually. You see we were discussing while we were getting ready to go out when the last time was that we had asked someone to have the children over night so we could go out as a couple and meet up with friends.  

We can’t remember. We have both gone out with friends while the other has stayed at home. We have very occasionally asked someone to come sit with the children so we could go out, but it has always been so last minute that we have gone for a meal just the two of us, not with anyone else. We had a weekend in Paris as a birthday gift for my 40th from my in laws, which was lovely, but it is almost 3 years ago now and we have had very few nights out together since.

In the last three weeks we have been out together, as a couple, without children, on an evening, three times. We have had countless daytime dates and we are enjoying spending time together so much. We are still enjoying quality time with the children, but we have made ourselves a promise that we are going to make the effort to go out together as a couple, in the evening more.

 

This transformation is about so much more than going out though.

Look at our faces in the photos above. Now look at this photo from our holiday a couple of years ago. 

I loved this photo, I thought it was a really happy photo of the two of us. But look how much happier we look in the recent photos

It feels as though a light has been switched back on inside us and we are filled with a new found appreciation of life and our relationship.

We have been together for 18 years this year, and I feel like I did when we first got together. 

Life as a couple is never linear. It is not a simple path. It is a rollercoaster. It has twists, turns, challenges and triumphs. During our time together we have overcome serious physical health challenges, parenting challenges, financial worries, grief… and that’s just the tip of the iceberg!

We have also been blessed to have three beautiful children, amazing parents, incredible friends, fabulous days out, heart warming parents evenings, holidays with loved ones and pure pride and joy watching our children grow and achieve their own successes. 

When I was younger I remember my lovely Dad talking to me about  a family friend who was going through a divorce at the time. I was asking what had gone wrong. Dad, in his wisdom, said that nothing  had gone wrong. They had just stopped loving each other. He was really candid and said that he and Mum had just been really lucky because they had always managed to grow together as they had changed as they had got older, “not everyone is so lucky”, he said.  

These words have come to me many times over the years, and he probably doesn’t even remember the conversation. It’s so true though. Over the years our marriage has had some rocky times. Times I wasn’t sure we could get through. Times I considered walking away. Fortunately, just as we were getting to that point, we always managed to pull back together. Life would get really difficult and something would happen to make us remember how fortunate we are to have each other and give us a new found appreciation of our marriage.  

I believe you can have several marriages to the same person without ever getting divorced. I know that we are on maybe marriage number three or four now. Every time we have had something dramatic to cope with, we reinvent ourselves, and our relationship deepens, and grows more beautiful than ever. 

It is easy when life is busy and you have; children, family, work, a home to look after, to lose track of the important things. We get busy doing and forget to be. 

I have always loved my husband but it is often easy when you are busy and tired to scale back the little actions that can make your relationship really special. Whether it is remembering to give each other a kiss before you leave, making a cuppa in bed, paying them a complement or just generally supporting each other.  Taking time to really invest some time and energy into your relationship is never wasted, it will, in most cases, reap rewards and you will get back all that you put in and more. 

Sometimes, life can give you a little nudge to make these changes – like giving you a reason to go out as a couple and reminding you how much you need that – but sometimes you have to make a decision yourself. 

Yes we had the initial nudge and we went out to the after show party together, but we then made the decision to extend that impact and make sure that we were able to also go to the birthday party. We have committed to going out together much more often. We will make this happen.

Life has changed and it is happier and healthier because of one event, one decision. You just never know when life might give you that nudge in the right direction. Keep looking out for the signs. 

 

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